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The Boy Whose Skin Fell Off (2004)
Directed by Patrick Collerton
Documentary, TV Movie · 50m
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
Cast
Crew
- Director
- Patrick Collerton
- Editor
- Nick Fenton, Sue Giovanni
- Producer
- Patrick Collerton
Details
- Release date
- 2004-03-25
- Runtime
- 50m
- Genres
- Documentary, TV Movie
- Original language
- EN
- Countries
- United Kingdom
- Production
- Channel 4 Television, Yipp Films Ltd